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Fighting Blindness AGM 2016

Thank you to everyone who attended the Fighting Blindness Annual General Meeting in the Ashling Hotel, Dublin on Saturday. We were delighted to catch up with old friends and welcome new members as we discussed the events of 2015 and shared our plans for the year ahead. As a patient-led organisation our members are central… Read more »

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Genable Technologies Acquired by Spark Therapeutics

Patient Led Research Moves Closer to the Clinic Fighting Blindness is very pleased with the announcement that Spark Therapeutics, a US based gene therapy company, have acquired Genable Technologies Ltd, a spin-out campus company from Trinity College Dublin of which the charity were early supporters. Kevin Whelan, Chief Executive of Fighting Blindness commented on the… Read more »

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Major Rare Disease Conference Hears Ireland Trails Europe in Provision of Genetic Services and of Critical Need for Government Action

– Delays of more than 15 months for hundreds of families in accessing genetic services – February 29 is International Rare Disease Day with over 80 countries hosting events to highlight rare diseases and their impact on people’s lives A major conference in Dublin Castle on February 29 to mark International Rare Disease Day has… Read more »

Many thanks to the Hospital Saturday Fund

The Hospital Saturday Fund Supports Fighting Blindness and several other great causes! Twenty-four Irish charities received donations from the Hospital Saturday Fund at a special reception hosted in Dublin recently. In total, €106,500 was donated to the medical charities and organisations at the event, which was hosted by Ardmhéara/Lord Mayor of Dublin, Críona Ní Dhálaigh…. Read more »

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Rare Disease #IrishMed Twitter Chat

Ahead of International Rare Disease Day next Monday, February 29, tonight’s #IrishMed Twitter Chat will focus on the topic of rare diseases. This week’s chat, run by Dr Liam Farrell, is co-hosted by Anne Lawlor from the Genetic and Rare Disorders Organisation (GRDO) and Derick Mitchell from the Irish Platform or Patients, Science and Industry… Read more »

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Thank you for supporting the Sporting Lunch

Huge thanks to all who came along and supported this year’s Sporting Lunch. We were delighted to be joined by over 250 glittering guests including sporting legends Willie Mullins, Mick Galwey, Fiona Coughlan, Philip Doyle, Jason Smyth and Nicky English. With broadcaster Ivan Yates as MC lending his own brand of cheeky humour to the event. We also… Read more »

Travelling with Sight Loss

“I am married and mother to three adult children. I am visually impaired and can feel very alone at times. I live in the countryside in west Waterford. Due to my eye condition and fibromyalgia I am unable to get out much on my own. I am very much dependent on my family and close friends…. Read more »

Winners of the Fundraising Draw

Congratulations to the following winners of the recent Fundraising Draw that took place in Harney’s Ballyedmond, Gorey, Co Wexford on Sunday 12th December 2015 Ist €1000.00 Eamon Barrett 2nd €500.00 Marie Walker 3rd €250.00 Peter Cronin 4th €250.00 Mabel Harris Huge thanks to all who supported.