Welcome to Visionaries, Autumn 2015

Image of Caitriona DunneIn this issue we have exciting news about two clinical trials due to begin the U.S. for retinitis pigmentosa (RP). We can also reveal the excellent line-up of speakers for the Retina 2015 Conference, which you can register for now at www.Retina.ie.

We are delighted to report that the pilot music programme run through Insight Counselling Centre over the summer was a huge success and a second term, along with a new choir, has just begun. Insight continue to offer a wide range of counselling and support services to people and families affected by sight loss. You can contact the service on 01 674 6496.

Following successful information events in Donegal and Derry in July we are planning more events around the country in 2016. Please get in touch if you would like us to visit your local area.

We continue to engage with relevant stakeholders on the implementation of the National Rare Disease Plan, and as part of the National Vision Coalition, working towards a National Vision Health Strategy.

Our fundraising team are busy organising the annual Glendalough Trail and a number of other events, all of which help fund research, counselling services and our advocacy work. Thank you to everyone who has taken part in fundraising activities over the summer, we are extremely grateful for your support.

Caitríona Dunne, Communications and Advocacy Executive