EURORDIS Membership Meeting 2015

The annual EURORDIS Membership Meeting took place in Madrid, Spain from May 28 to May 30. Each year, the meeting provides patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of people living with a rare disease. Some of the topics covered in detail at this year’s meeting were European Reference Networks (ERN), Centres of Expertise for Rare Diseases and access to orphan therapies. You can find more information about all of these on the EURORDIS website,